Report on Nat'l Survey of Peer-Run Organizations

First Report On National Survey Of Peer-Run Organizations

Lived Experience Research Network; 12/07/13 


The first report for public dissemination on the National Survey of Peer-Run Organizations is now available for download here.  This report briefly describes the survey methods used and sheds light on organizational operations of 380 peer-run programs which participated in the study.  More information about the project can be found here.

This study is being conducted by LERN staff at Johns Hopkins School of Public Health. The overall goal of the study is to conduct a nationwide survey of peer-run organizations and consumer-operated service programs.  The study will contribute to information on the role peer-run organizations are playing in the mental health system.  The study will provide data for planning, reimbursement, and sustainability, and will be important for diffusing the peer-run model, and educating the government, the organizations, and advocates.

Details of the report:

Project Team: Laysha Ostrow, Stephania Hayes

Project Goals and Objectives

  • Describe peer-run organizations' operations and characteristics
  • Understand attitudes of peer-run organizations towards participation in health homes with providers
  • Understand the willingness of peer-run organizations to accept Medicaid reimbursement


  • A survey was designed by conducting stakeholder interviews with representatives from research, government, managed care, advocacy, and peer support. It was pre- and pilot-tested with 15 organizations/programs
  • The primary strategy for identifying organizations was through contacting statewide consumer networks and state offices of consumer affairs in every state from August 2010 to June 2012
  • Peer-run organizations and peer-operated programs were recruited to participate in a web-based survey from April 2012 to October 2012
  • Data collection has been completed, and analyses and reporting of results are now ongoing
  • Participatory Strategies

    The majority of stakeholders who gave input on the survey design were user/survivors--regardless of which sector of the mental health field they work in

All project staff were people with lived experience who had worked in peer-run organizations and advocacy

Final inclusion and exclusion criteria were related to management structure identified by a consensus panel of user/survivor advocates, technical assistance providers, program directors, and researchers