Revisiting the Rationale and Evidence for Peer Support

NYAPRS Note: After a February opinion piece in the Psychiatric Times suggested that the “Jury is Out on Paid Peer Support for People with Mental Illness,” we urged some of our finest national researchers to write the following rejoinder. Go to http://www.psychiatrictimes.com/special-reports/revisiting-rationale-and-evidence-peer-support to also see the tables the article includes. Special thanks to Larry Davidson for organizing this wonrwesponse.

Revisiting the Rationale and Evidence for Peer Support

Larry Davidson, PhD, Chyrell Bellamy, MSW, PhD, Mathew Chinman, PhD, Marianne Farkas, ScD, Laysha Ostrow, PhD, Judith A. Cook, PhD, Jessica A. Jonikas, MA, Harvey Rosenthal, Sue Bergeson, Allen S. Daniels, EdD and Mark Salzer, PhD

Psychiatric  Times  Jun 29, 2018  Volume: 35  Issue: 6

The authors argue that that stating that peer support “lacks evidence” is simply not accurate

SIGNIFICANCE FOR PSYCHIATRISTS

Patients in the treatment group—with peer support— had fewer psychiatric hospital admissions on average and more episodes of crisis stabilization than those in the comparison group

A recent issue of Psychiatric Times featured an opinion piece by D.J. Jaffe who argued that there is little empirical support for the effectiveness of paid peer-support staff—persons in recovery from mental illnesses who are trained to provide support to others—on the outcomes of “homelessness, arrest, incarceration, violence, and needless hospitalization.”1 In this article, we rebut Mr. Jaffe’s argument by revisiting the rationale and evidence base for peer support.

While we agree that the government needs to fund more research on this important topic, we argue that stating that peer support “lacks evidence” is simply not accurate. In fact, as we will explain below, over 30 studies have found positive effects in numerous outcome domains. But first it is important to understand the nature and intended impact of this form of service delivery.

Rationale for Peer Support

The rationale for peer support is neither new nor limited to psychiatry. Paid peer support has been around since the birth of the discipline in the late 18th century, with the hiring of recovered patients as staff identified as one of the most essential components of “moral treatment.”2 Harry Stack Sullivan continued this practice in his hospital in the 1920s, while the milieu therapy models that dominated psychiatry for the following decades relied in large part on the benefits of peer support and role modeling.

Outside of psychiatry, the Institute of Medicine reports that various forms of peer support can be found in virtually every branch of medicine that deals with chronic conditions, from asthma and cancer to diabetes and hypertension.3 The rationale here is simple; as explained by Fisher and colleagues4 in a recent review, persons with chronic illnesses spend about 6 hours every year in a health professional’s office, while spending the remaining 8760 hours of the year living with and trying to manage their health conditions. In psychiatry, this ratio is likely much less. Whether it is diabetes or mental illness, helping someone to live well with a serious illness is different from treating the illness, and it takes a different investment of time and effort. Simply put, people living with serious mental health conditions need more assistance and support than can be provided by a physician alone.

In psychiatry, as in other areas of chronic illness management, that “more” is typically provided by paraprofessionals. In medicine, there is currently rapid growth in the hiring of community health workers to assist patients with all manner of conditions to engage in self-care and to navigate complex health systems. In public psychiatry, paraprofessionals spend the most time with persons with chronic conditions, but usually have little to no training.

Training and hiring persons in recovery to provide peer support represents a win-win situation for resource-strapped systems. Patients receive support from trained peers who instill hope, model self-care, and help navigate the health care system. Peer support providers are gainfully employed in a role that supports their own recovery by allowing them to do personally motivated work. Systems gain a trained, effective workforce that pushes providers beyond the basic outcomes of decreased homelessness, incarceration, and hospitalization to include other outcomes that also matter to patients and their loved ones, ie, those associated with reclaiming a meaningful life.

To aspire to help persons with mental illnesses to establish meaningful lives is not to overlook or minimize the need to address homelessness, incarceration, and hospitalization. Because many have walked in their shoes, peer-support staff are especially expert in forging caring relationships with people who are overcome by the direst of circumstances and who have not responded to traditional approaches. Peer-support staff can effectively engage patients because they understand how they live (all too often on the street or in shelters) and offer practical help with basic needs and everyday living. In contrast to coercive measures that further erode patients’ sense of self and basic dignity by focusing solely on illness, peer-support staff can earn patients’ trust by providing assistance with day-to-day struggles, offering a more effective and sustained pathway to needed care tan 2-week involuntary inpatient stays.

The Evidence for Peer Support

It should be no surprise that the CMS study Jaffe references found that deploying peer staff increased the use of crisis services while decreasing hospitalizations.5 This increase in service use was a positive outcome for persons who otherwise were disconnected from all outpatient treatment. Perhaps it is on this score, above all, that the effectiveness of peer services has been shown most consistently.

When reviewing this evidence, it is important to recognize that neither peer nor non-peer non-clinical staff “treat” mental illness, that is not their role. Peer-support staff complement clinical care; their role is to instill hope, engage patients in self-care and health services, help them navigate complex and fragmented systems, and promote their pursuit of a meaningful life. When assessed on their ability to do these jobs for which they have been trained, peer-support staff clearly demonstrate effectiveness.

The Table provides examples of the roles peer-support staff have played that have garnered consistent evidence in improving patient outcomes.6 To date, over multiple studies have found that peer staff who are working in peer-specific roles are better able to engage people in caring relationships7–8; improve relationships between clients and outpatient providers, thus increasing engagement in non-acute and less costly care9–17; decrease substance use, unmet needs, and demoralization8,11,17–18; and increase hope, empowerment, self-efficacy, social functioning, quality of and satisfaction with life, and activation for self-care.8,11–13,16,18–30

Patient-Care Outcomes

Why would these kinds of gains not be worthy of funding? Presumably because they have yet to be connected directly to reductions in the negative outcomes of arrest, incarceration, and violence. But these poor outcomes are more reflective of societal and systemic failures than of mental illness per se. They are due primarily to long-standing discrimination that has resulted in a lack of parity in funding for community-based mental health care.

This becomes obvious when one looks beyond the borders of the US. Homelessness, arrests, and incarceration are not attributable to mental illness alone, because they are not significant problems for persons with mental illness in most other developed countries. Mental illness alone poses minimal risk for violence (around 4%).31 Mass shootings are more a result of our failure to control access to assault weapons than a failure to treat mental illness. As Zakari12 pointed out in the Washington Post, the incidence of mental illness in the US is the same as that of the UK, yet the rate of gun violence in the US is 40 times that of the UK. Surely, unaddressed factors other than mental illness contribute significantly to such poor outcomes.

 

Foremost among these is the long-standing stigma against persons with mental illnesses that has resulted not only in the lack of adequate funding for community-based care but also acts as a barrier to accessing what care is available sooner, which might prevent the need for more intensive care later on. Homelessness, incarceration, and violence among persons with mental illness are more of a consequence of our failure to accord such persons the rights of dignity, respect, and full citizenship that is their birthright than to mental illness per se.

Conclusion

No one would deny a person in recovery from cancer, or a person living with diabetes, the opportunity to contribute to the shaping and delivery of cancer or diabetes care. Persons in recovery from mental illnesses have insider knowledge of what it takes to have a life well lived with mental illness. In fact, two of the most influential visionaries in the history of mental health policy, Dorothea L. Dix and Clifford W. Beers32 had their own experiences of mental illness. Based on the credibility and trustworthiness fostered by their lived experience, their passion to give back, and their dedication to making recovery a reality for others who suffer with mental illness, other people in recovery (ie, peers) can also make invaluable contributions to better outcomes by advocating for, transforming, expanding, and providing effective mental health services.

Disclosures: 

Dr Davidson is Professor of Psychiatry, Yale University School of Medicine; Dr Chinman is Research Health Scientist, VA Pittsburgh Healthcare System and Senior Behavioral Scientist, RAND Corporation; Dr Farkas is Professor, Center for Psychiatric Rehabilitation, Boston University; Dr Ostrow is CEO, Live & Learn, Inc, Morro Bay, California; Dr Bellamy is Associate Professor of Psychiatry, Yale University School of Medicine; Dr Cook is Professor and Ms Jonikas is Program Director, University of Illinois at Chicago College of Medicine; Mr Rosenthal is Executive Director, New York Association of Psychiatric Rehabilitation Services, Albany, NY; Ms Bergeson is Principal, Recovery, Resilience, Engagement and Activation Partners, LLC, Lake, Michigan; Dr Daniels is Senior Study Director, Westat, Cincinnati, Ohio; and Dr Salzer is Professor of Rehabilitation Sciences, Temple University College of Public Health, Philadelphia, Pennsylvania.


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